This section includes information for each neonatal unit in the London Neonatal Operational Delivery Network (ODN), a jargon buster for terminology and links to external websites which provide support to parents and their families throughout their time in neonatal care.

As babies are sometimes transferred between units, the information provided for each unit includes details on transfers, facilities and services.

The terminology sometimes referred to during this time can be difficult to understand, please refer to our Jargon Buster for a list of frequently used terms and definitions to make understanding your baby’s care a little easier.

FURTHER INFORMATION:

As there is some great information out there already for parents to utilise, we have collated a small selection below on what you may find useful.

Safe Baby Care

https://www.lullabytrust.org.uk/safer-sleep-advice/premature-babies/

https://www.lullabytrust.org.uk/wp-content/uploads/The-Lullaby-Trust-Safer-Sleep-Advice-For-Premature-Babies.pdf

SIDs @ Lullaby Trust

Safer Sleep for Parents

Baby Choking

Baby CPR (not breathing)

Medicines

Vaccinations remember to check with your doctor what immunisations your baby needs as they may have already received some on the neonatal unit. You can also opt for an electronic ‘Red Book’ at eRed Book and plan ahead with reminders.

Immunisation for Premature Babies born before 31/07/2017

Immunisation for Premature Babies born after 01/08/2017

Sepsis in children

Meningitis & Septicaemia

Nutrition

La Leche League

Best Start

UNICEF

Looking after Yourself

Trying to look after your own heath whilst your baby is on a neonatal unit can be challenging; try the Eatwell guide for advice on eating right. Eatwell

Mental Health

APNI (association for post natal illness)

More Information

NHS (access the ‘Newborn’ tab)

BLISS (National Charity for babies born too soon)

Cambridge NNU

BabyBuddy from Best Beginnings, supplying advice and an app!

Charities and Support

Cleft Lip & Palate Association

Contact A Family

Cystic Fibrosis Trust

Downs Syndrome Association

Long Term Ventilation

National Childbirth Trust (NCT)

SANDS (Stillbirth And Neonatal Death Society)

Twin And Multiple Birth Association (TAMBA)

Tommy’s (Tommy’s free app for parents)

Ickle Pickles – Raising money for lifesaving equipment on neonatal units

Neonatal Butterfly Project

If you have any further suggestions to make this page more useful please contact the Network Management Team.

South West Neonatal Network in partnership with the charity The NICU Foundation has now released the first of its kind animation to support parents of sick and premature infants during a neonatal stay.

The animation, funded by The NICU Foundation,  aims to help alleviate some of the worries that parents may have about the unfamiliar environment, equipment and everyday noises of the unit during an already unsettling time. The animation also shares information for parents to support them to understand their vital role on a Neonatal Unit such as the benefits of interacting with and holding their baby, the facilities and support available and the staff they will meet throughout their journey. The animation has since been uploaded onto the South West Neonatal Network and The NICU Foundation websites and can be accessed here directly on our website:

http://swneonatalnetwork.co.uk/parents/how-can-we-be-involved-in-our-babys-care/neonatal-animations/

Data Collection:

When your baby is on the neonatal unit important information about their care will be recorded. for more information on how this data is used please download the poster below.

NDAU poster

Map of the London Neonatal ODN and Hospitals