National organisations and charities who can provide additional emotional and practical support to families. Also providing support and information for professionals.
ARC a national charity helping parents and healthcare professionals through antenatal screening and its consequences – www.arc-uk.org
Bliss the national charity that supports babies born too soon, too small, too sick and their families – www.bliss.org.uk
Camp Simcha – supporting families of sick children – www.campsimcha.org.uk
Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying – www.childbereavementuk.org
Child Death Helpline a helpline for anyone affected by the death of a child of any age, from pre-birth to adult – www.childdeathhelpline.org.uk
Contact a Family is a national charity for families with disabled children, who provide information, advice and support, bringing families together so they can support each other – www.cafamily.org.uk
Lullaby Trust the Lullaby Trust provides specialist support for bereaved families and anyone affected by a sudden infant death – www.lullabytrust.org.uk
Multiple Birth foundation (MBF) Provides support and advice for families with twins or more – www.multiplebirths.org.uk
Newlife helping UK children with disabilities and terminal illness – www.newlifecharity.co.uk
Rainbow Trust provides emotional and practical support to families who have a child with a life limiting or terminal illness – www.rainbowtrust.org.uk
REACT rapid effective assistance for children with potentially terminal illness, national charity working to improve the quality of lives of children and their families – www.reactcharity.org
Remember My Baby offer a free service of baby remembrance photography to all parents suffering the loss of their baby – www.remembermybaby.org.uk
Sands offer parents support when their baby dies during pregnancy or after birth- www.uk-sands.org
SIBS support siblings who are growing up or who have grown up with a brother or sister with any disability, long term chronic illness or life limiting condition – www.sibs.org.uk
TAMBA support and advice (bereavement advice) for families with twins or more – www.tamba.org.uk
TFSL (Together for Short Lives) the UK charity that speaks for all children with life limiting conditions and their families – www.togetherforshortlives.org.uk
WellChild national UK children’s charity helping to get seriously ill children out of hospital and cared for at home with their families wherever possible – www.wellchild.org.uk
