Relevant national publications, guidance and frameworks to support clinical practice.
Publications
- ACT: A Care Pathway to Support Extubation within a Children’s Palliative Care Framework. First edition 2011
- ACT: Basic Symptom Control In Paediatric Palliative Care
- Archives of Disease In Childhood: Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practic
- A Perinatal Pathway for Babies with Palliative Care Needs 2017
BAPM
- BAPM: The Management of Babies born Extremely Preterm at less than 26 weeks of gestation
- BAPM: Palliative Care (Supportive and End of Life Care) A Framework for Clinical Practice in Perinatal medicine
- BAPM: Palliative Care (Supportive and End of Life Care) A Framework for Clinical Practice in Perinatal Medicine Report of the Working Group, August 2010
Bliss
- Bliss: The mapping of palliative care provision in neonatal units in England using the Together for Short Lives Neonatal Service Self Assessment Tool
- Bliss Baby Charter Audit Tool 2012
Department of Health
- Department of Health: Better Care: Better Lives
- Department of Health: Toolkit for High-Quality Neonatal Services
Hospital
NICE
Royal Colleges
- Royal College of Nursing RCN Guidance: Career, education and competence framework for neonatal nursing in the UK
- Royal College of Nursing RCN Guidance: Breaking bad news: supporting parents when they are told of their child’s diagnosis: Guidance for nurses, midwives and health visitors
- Royal College of Paediatrics and Child Health: Why children die: death in infants, children and young people in the UK: Part A May 2014
Sands
Together for Short lives
- Together for Short Lives: A Guide to End of Life Care Care of children and young people before death, at the time of death and after death
- Together for Short Lives: Basic Symptom Control in Paediatric Palliative Care The Rainbows Children’s Hospice Guidelines. Ninth Edition, 2013
- Together for Short Lives: A Family Companion to the Together for Short Lives Core Care Pathway for Children with Life-limiting and Life-threatening Conditions. Third edition, 2014
University
AHP Staffing Guidance
